Wow, what a whirlwhind of a day yesterday! I drove to the hospital and got there about 9:30 in the morning. Mom had been taken off the (what I call) dopey drug and was administered 1 Ibuprofen and 1 Vicodin. I could already tell she was more alert! During the night and again in the morning she had had a bowel movement, but was feeling a bit dizzy and her stomach was upset. She was eating fruit because she was told to do so. I could also see that her anxiousness was returning, which made me worry a bit. She knew she wanted to get out of there, and was doing everything she could to prove it. Walking when told to do so, eating and drinking even when she didn't feel like it...what a trooper!!
I could tell it was wearing her out, so in the afternoon, I told her I was going to get something to eat so she could rest. I told the nurses that I would be RIGHT back, and went downstairs. I came back, and they had already removed her drain! Ooooh, I was pissed at myself at the nurses. I wanted to be there when they did it, because I had been told earlier that it was going to be painful. I had told the tech that, but she was not the one that had removed the drain. Mom told me it was incredibly painful, but she made it through. I told her that would be the worst part of the day...and I was right! Her resident came in and asked her if she was ready to leave that day, and she told him that there wasn't anything she could do to recouperate more at the hospital than she could do at home, so he said he'd be back. A little while later, the physical therapist came in and asked mom to get out of the bed. When mom reached for the bed rail, the therapist put the bed rail down and said, "you won't have one of those in your home bed." Then mom reached for the chair that was close by and that stinkin' therapist moved that out of the way, too!!! Mom rolled onto her side, sat up, than stood up with her arms up and said, "Ta-da!!" and was up and moving!! LOL. Nothing was going to keep her in that hospital another day. She then had to go up and down stairs which she didn't seem to have problems with. I don't know if it was adrenaline that was keeping her going or what, but I was so proud of her!!! I called my dad and aunt and told them that she was able to go home.
As we waited, a nurse came in and told mom that she had to take a medicine to keep the blood clots from forming...and it was in the form of a shot. Her anxiety sky rocketed. Mom and I started working on breathing techniques and waited for dad to get there, since he was the one who had to administer the shot. Dad finally walked in, read some material, waited for the nurse to come in, and then showed her how awesome HE is by not blanching at all, and gave my mom a shot of saline to show her he could do it. I was just humbled by the entire experience. After waiting for what seemed forever, mom was finally released and was able to go home. I know that her recovery will go even faster at home, and know that we will all rest a bit easier now that some of the worry of her recovery has passed. I still ask for prayers that she gets through the recovery period. Now that the morphine-like substance has left her body, the anxiousness will return. My mom has OCD and has a hard time NOT focusing on certain aspects. I pray that God will calm her mind and her heart as reality sinks in on what needs to happen next. I pray that since her body has not had solid foods in a week that her stomach eases, and the reintroduction of food does not cause her so much discomfort that she doesn't want to eat!! I also pray that my dad stays steady and strong. He CAN do this.
Wednesday, November 12, 2008
Monday, November 10, 2008
A day of relaxation...sorta
Today I stayed home again. My first day of a long week of cramps and that sort. I would have been no help at the hospital...mom would have wanted to give ME some of the medications she was getting. Hell, I might have asked for them. Stupid monthly cramps.
Anyway, talked to dad, and he had a chance to talk to the doctor. She answered all of his questions which is a great thing. We've found out that the name of mom's cancer is primary peritoneal cancer or PPC for short. Here is a good site if you want to learn a little more about it.
http://www.cancerbackup.org.uk/Cancertype/Ovary/Relatedcancers/Primaryperitonealcancer
It sounds very rare, so not a lot of people will have heard of it, so I'm still sticking with ovarian cancer when explaining it to people, or saying it's a type very similar to ovarian cancer.
Today mom has been a walking fanatic. Walking more and more, longer and longer is a great step. She knows that to get out of the hospital, she HAS to have a bowel movement, and to do that, she needs to get out of bed and make things happen. Mom doesn't have an appetite lately, which is okay since they still have her on a liquid diet. After this experience, I wouldn't doubt she'd never touch artificial sweetened jello again.
The social worker was talking to mom while I was on the phone. She's getting mom's family history, trying to make a case to the insurance company to allow her to have the genetic testing for the BRCA 1 gene. Even with the PPC, it sounds like the type of cancer that is genetic, so if I find out mom was predisposed, I need to do my own research, too. The problem with this genetic testing and getting insurance to cover it is if I AM predisposed, my insurance company can dump me. Not something I'm willing to have happen. I've been doing a bit of research on how much it would be to pay out of pocket.
Women in my life. I ask you at this time to think long and hard about your yearly exams. Even though these exams didn't catch my mom's because of the type it was, she really was dedicated to going. Get your mammograms. Get your yearly paps. It can make a difference between a chance of living because they could catch the cancer early to just trying to keep you alive if you don't. I love you and ask this of you. I know my mom will be saying this, too.
Anyway, talked to dad, and he had a chance to talk to the doctor. She answered all of his questions which is a great thing. We've found out that the name of mom's cancer is primary peritoneal cancer or PPC for short. Here is a good site if you want to learn a little more about it.
http://www.cancerbackup.org.uk/Cancertype/Ovary/Relatedcancers/Primaryperitonealcancer
It sounds very rare, so not a lot of people will have heard of it, so I'm still sticking with ovarian cancer when explaining it to people, or saying it's a type very similar to ovarian cancer.
Today mom has been a walking fanatic. Walking more and more, longer and longer is a great step. She knows that to get out of the hospital, she HAS to have a bowel movement, and to do that, she needs to get out of bed and make things happen. Mom doesn't have an appetite lately, which is okay since they still have her on a liquid diet. After this experience, I wouldn't doubt she'd never touch artificial sweetened jello again.
The social worker was talking to mom while I was on the phone. She's getting mom's family history, trying to make a case to the insurance company to allow her to have the genetic testing for the BRCA 1 gene. Even with the PPC, it sounds like the type of cancer that is genetic, so if I find out mom was predisposed, I need to do my own research, too. The problem with this genetic testing and getting insurance to cover it is if I AM predisposed, my insurance company can dump me. Not something I'm willing to have happen. I've been doing a bit of research on how much it would be to pay out of pocket.
Women in my life. I ask you at this time to think long and hard about your yearly exams. Even though these exams didn't catch my mom's because of the type it was, she really was dedicated to going. Get your mammograms. Get your yearly paps. It can make a difference between a chance of living because they could catch the cancer early to just trying to keep you alive if you don't. I love you and ask this of you. I know my mom will be saying this, too.
From the mouths of babes
I was talking to my eldest son the night before last. Told him I needed a hug. He gave it to me, and asked how I was doing. I told him I was worried about Nana. He said, "but they got all of the cancer out, right?" I started to talk to him about the chemo...and he stopped me and said, "Mom, they got all of the cancer. I'm thinking positively and you should, too."
Commence draw droppage.
He's right. There's no use in thinking about years left. All I should be thinking about now is she's here with us. What a blessing she is to all of us.
Kids. They always say the darndest things.
Commence draw droppage.
He's right. There's no use in thinking about years left. All I should be thinking about now is she's here with us. What a blessing she is to all of us.
Kids. They always say the darndest things.
...
Because of my daze, I haven't been able to retain all of the information the nurses and doctors have been telling my family and myself. Yesterday, after being at the hospital, I started hearing tidbits that nagged at me through the entire day. "Lived a long time. At least 6-7 years when diagnosed." "Not through the next hard part, infection" and "Complications from the chemo". When you hear technical terms, it's easy for the mind to gloss over some of it, give the terms time to go through your head, and then BAM! reality hits. We're talking limited time, here. I keep hearing 3-5 years. 35-50% of women with ovarian cancer can get it again. I keep hearing about cancer swimming around in her abdomen. God, I know they have to be honest, but right now, I am thankful my mother is so out of it from the morphine that she's not retaining any of these facts. Let her body heal first, and then let the situation fully hit her.
I'm at the down part of the day, again. I'll be taking off visiting her today, and will be back tomorrow. I'll be doing a lot of research, because it's the only thing I CAN do.
As for the positives yesterday, mom was able to get out of bed, walk down the hall, and then lay down again. She took two walks...the second longer than the first which was great! My aunt and I were thoroughly pissed when we heard she had a terrible, pain filled night the first night because somehow her IV had come apart and the drugs for pain weren't getting into her body, but spilling onto the floor. My mom kept saying she kept hitting the button, and no relief was happening. I'm a pretty even tempered person, but was ready to kick ass and take names later when I heard about this!! The nurse evidently figured out the problem and fixed it, but we weren't happy to hear about it, and felt guilty for leaving her alone the first night.
Edit: did some research. Hard facts to swallow.
I'm at the down part of the day, again. I'll be taking off visiting her today, and will be back tomorrow. I'll be doing a lot of research, because it's the only thing I CAN do.
As for the positives yesterday, mom was able to get out of bed, walk down the hall, and then lay down again. She took two walks...the second longer than the first which was great! My aunt and I were thoroughly pissed when we heard she had a terrible, pain filled night the first night because somehow her IV had come apart and the drugs for pain weren't getting into her body, but spilling onto the floor. My mom kept saying she kept hitting the button, and no relief was happening. I'm a pretty even tempered person, but was ready to kick ass and take names later when I heard about this!! The nurse evidently figured out the problem and fixed it, but we weren't happy to hear about it, and felt guilty for leaving her alone the first night.
Edit: did some research. Hard facts to swallow.
Not sure what to label this
Okay. New information that does ABSOLUTELY nothing for anyone, but it is new. Mom's cancer started on her omentum, not in her ovaries. They will be treating it the same as ovarian cancer, but...this answers a LOT of questions that we have. As in...how in the hell did it spread so fast (within a year)??? She had an ultrasound of her ovaries last year with nothing showing.
Around two years ago, my mother had what is called an omental infarction. This is the twisting of her omentum. Here's an article about what the omentum is
With the omentum infarction, came severe abdominal pain. They did a cat scan, diagnosed that was what was causing the pain, and then sent her home. The pain eventually resided, and the omentum was out of our minds.
I believe the cancer started the omental infarction, and it wasn't detected in the cat scan. I believe she's had cancer for almost two years. I believe it has had the time to spread in this two years.
I'm blown away. My father and I are piecing things together. Who to call to let these doctors know NOT to blow off patients with omental infarction. We feel that it is a necessity to at least put the information out there.
Now, I'm not a doctor, this is purely my own guessing. But the biopsy has proven that the cancer came from her omentum. Could we have prevented her having Stage 3C cancer by removing her omentum long ago? Do we need to even be asking ourselves this? I don't know, I just do know that I don't want this to happen to anyone else.
Around two years ago, my mother had what is called an omental infarction. This is the twisting of her omentum. Here's an article about what the omentum is
With the omentum infarction, came severe abdominal pain. They did a cat scan, diagnosed that was what was causing the pain, and then sent her home. The pain eventually resided, and the omentum was out of our minds.
I believe the cancer started the omental infarction, and it wasn't detected in the cat scan. I believe she's had cancer for almost two years. I believe it has had the time to spread in this two years.
I'm blown away. My father and I are piecing things together. Who to call to let these doctors know NOT to blow off patients with omental infarction. We feel that it is a necessity to at least put the information out there.
Now, I'm not a doctor, this is purely my own guessing. But the biopsy has proven that the cancer came from her omentum. Could we have prevented her having Stage 3C cancer by removing her omentum long ago? Do we need to even be asking ourselves this? I don't know, I just do know that I don't want this to happen to anyone else.
Just dealing
Yesterday was a rough one for me. After the shower, and the cry, I felt a bit more focused and was ready to visit my mom. I had made a couple of meals for my mom and dad, and drove over to see them. When I got there, I searched out my mother, and just held her for awhile. After she cried, we got up and talked quite a bit. Her fears are my fears. She wouldn't be as worried about this whole thing if they hadn't already found cancer on other parts of her body. No one with cancer in our family has lived to tell about it. They all have died young.
I didn't cry. I wouldn't. I don't want her to think that I'm cold, I just am afraid if I start crying, that I won't be able to stop when I'm with her. We talked of positive thinking, and having lots to live for. We talked of many things because that's what she needed to do was just to talk about it.
After putting her to bed, I drove to Longmont to pick her up some nightgowns to take back to her house. On the way there, I had a panic attack. I stopped the car and just sat there, then messaged my mother-in-law. She called me right back and talked me through it.
The thing that gets me the most is the total feeling of powerlessness in the situation. I am very much a control freak, and there is absolutely NOTHING I can do to make this better.
Only three more days, then we'll know.
I didn't cry. I wouldn't. I don't want her to think that I'm cold, I just am afraid if I start crying, that I won't be able to stop when I'm with her. We talked of positive thinking, and having lots to live for. We talked of many things because that's what she needed to do was just to talk about it.
After putting her to bed, I drove to Longmont to pick her up some nightgowns to take back to her house. On the way there, I had a panic attack. I stopped the car and just sat there, then messaged my mother-in-law. She called me right back and talked me through it.
The thing that gets me the most is the total feeling of powerlessness in the situation. I am very much a control freak, and there is absolutely NOTHING I can do to make this better.
Only three more days, then we'll know.
Outcome 2
After a 2 1/2 hour surgery, the surgeon came out, brought my dad, aunt and I into a room, sat us down and told us what was going on. I had already assumed by how long the surgery took that they had found more cancer than previously thought. They had. It had attacked both ovaries, a small piece of her spleen, all of her omentum, her appendix and also three tumors were on top of her bowel. They were able to remove all cancerous pieces and she believes she got it all. There was no cancer in her lymph nodes, thank goodness. My aunt and I started to cry and then looked at each other wondering WHY we were crying? We knew she had cancer already, but the shock of all of the places it had gone was staggering. We took the two hours we needed for mom to be in recovery to start thinking positively so we could be the light that my mom would need. Unfortunately, it took forever for her to get into another room, so I was not able to see my mom last night. I will be leaving today to go see her.
The plan of action is, of course, chemo. Starting in 4-8 weeks. Two types of chemo, one through an IV and another administered through her abdomen. The abdomen will have stronger side effects (couldn't bring myself to ask what they were, but I can sure guess) and that will terrify her. Administering the chemo to her abdomen will prolong the cancer from coming back 18 more months. Not sure if mom will be up to it.
Prayers would be good. I'm happy that the surgeon thought she got everything, sad that the recovery will take longer. We're talking about a woman who has to leave the house every day or she'll go stir crazy. I'm thankful my aunt is in town, and worried about my dad.
Just...dazed.
The plan of action is, of course, chemo. Starting in 4-8 weeks. Two types of chemo, one through an IV and another administered through her abdomen. The abdomen will have stronger side effects (couldn't bring myself to ask what they were, but I can sure guess) and that will terrify her. Administering the chemo to her abdomen will prolong the cancer from coming back 18 more months. Not sure if mom will be up to it.
Prayers would be good. I'm happy that the surgeon thought she got everything, sad that the recovery will take longer. We're talking about a woman who has to leave the house every day or she'll go stir crazy. I'm thankful my aunt is in town, and worried about my dad.
Just...dazed.
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